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Monday, 12th May 2008

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Hospice patient's dream wedding



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Published Date: 08 May 2008
INSPIRATIONAL Lee Smart – who has in incurable muscle-wasting disease – secretly planned the wedding of his wife's dreams at Pontefract Prince of Wales Hospice.
The 28-year-old was diagnosed three years ago with motor neurone disease on the same day his wife, Jenny, 29, found out she was pregnant.

The pair had a rushed wedding at register office two weeks later but Lee decided to organised a ceremony to renew their vows, which took place on April 24 at the hospice where he receives respite care.

Jenny said: “We had been together since were 16 so when we found out about his diagnosis, we just put everything on go and got married straight away.

“It was Lee’s idea to renew our vows. He came home from the hospice one day and said: ‘I know you wanted to get married in a church and I know you wanted a white wedding so I have planned it for you.’ I was surprised but so happy.”

The original ceremony was due to take place in September this year but unfortunately Lee’s condition deteriorated suddenly and it was brought forward.

Jenny said: “He had an infection and was admitted into the hospice for two weeks, but he got that extra bit of strength to fight back and we renewed our vows two days after he was discharged.

“Everyone at the hospice was fantastic and it was a mad rush to bring everything forward.

“It was a very emotional day. My eldest son, Brandon, who is seven, surprised me by walking me down to the chapel and when I turned the corner, there were tears in Lee’s and my family’s eyes.”

Rev Bob Cooper, from St Giles’ Church in Pontefract, also baptised the couple’s three youngest children on the day: Casey Louise, four, Liam, three, and Luke, two.

Jenny has now pledged to take part in the hospice’s women-only Starlight Walk on Saturday July 5 to help raise vital funds and thank them for the help they have given to her and Lee.

She said: “Before the hospice, I was Lee’s only carer and I had hit rock bottom and wasn’t looking after myself. The hospice has helped us so much.

“I want to raise awareness of motor neurone disease as well. It is not as well-known as cancer but it is a horrible illness. He was so young when he was diagnosed – just 22 and is only supposed to live for five years.

“I wish for a wand, to put it all right. It shouldn’t be happening to him. He should be out there walking and playing with his children.

“It is such a special place and I shall be walking with pride on July 5 for the hospice and for my husband.”

The midnight walk, which starts at Junction 32 is a six-and-a-half lap around Castleford and Glass Houghton – or double that for those who want to do two laps.

To take part contact the fundraising team on 01977 781477 or download an entry form from www.pwh.org.uk/starlightwalk.

Entry is £10 per person with a miniumum age of 14 and under 16s must be accompanied by an adult.

The full article contains 547 words and appears in Ponte and Cas Express newspaper.
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  • Last Updated: 07 May 2008 12:50 PM
  • Source: Ponte and Cas Express
  • Location: Pontefract & Castleford
 
 
  

 
 


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