Wakefield mum and teacher who underwent harrowing leukaemia treatment becomes face of charity’s winter campaign

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‘This time last year, when I should have been getting ready for Christmas with my family, I was all alone in hospital. Everything happened so quickly.’

Last year Emma Leeming, an English teacher and mother-of-two from Wakefield, had her world turned upside down when she was diagnosed with acute myeloid leukaemia (AML).

When she felt tired towards the end of the school term, she assumed it was nothing out of the ordinary.

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It was only when she collapsed and was taken to hospital, that a blood test diagnosed her with AML inversion 16 and myeloid sarcomas on her pancreas, uterus and liver.

Leukaemia patient Emma Leeming who is the face of Leukaemia UK's winter campaign. Picture Scott MerryleesLeukaemia patient Emma Leeming who is the face of Leukaemia UK's winter campaign. Picture Scott Merrylees
Leukaemia patient Emma Leeming who is the face of Leukaemia UK's winter campaign. Picture Scott Merrylees

Within days she was started on an initial course of chemotherapy and was told that she would need a stem cell transplant.

She said: “I started getting these agonising chest pains. It got so bad my husband called 999.

“Within just a few days, the results of a blood test showed I had acute myeloid leukaemia. I just couldn’t believe it.”

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After six weeks of chemotherapy, followed by a second round of FLAG-ida consolidation chemotherapy, Emma was luckily matched with a stem cell donor.

Emma in hospitalEmma in hospital
Emma in hospital

She returned to hospital in December last year to undergo the stem cell transplant that would save her life and allow her to be with her family this Christmas.

Emma, who lives at Woolley Grange and previously lived at Havercroft and Sandal, said: “It’s hard to put into words how awful those next few months of treatment were.

"The treatment I was having for leukaemia was so harsh I wasn’t allowed any visitors. It would have been too risky.

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“I couldn’t even speak to my two children by video call. Seeing me was upsetting them too much, because I didn’t look like their mummy anymore.

Emma and her daughterEmma and her daughter
Emma and her daughter

“I had one of the strongest types of chemo there is.

“I was only 40 and healthy, and it left me feeling totally broken. I can’t imagine how difficult it would be for someone older or more vulnerable than me.

"And after three rounds of chemo, I needed radiotherapy and then a stem cell transplant.

"All I wanted was to be at home with my family, enjoying Christmas.

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Emma and familyEmma and family
Emma and family

“Instead, after the transplant, I was alone in an isolation room. I felt like I’d run 100 marathons and was terrified of catching an infection – because I knew it could kill me.

“There was a week when I couldn’t eat at all because my mouth and throat were completely covered in ulcers."

Stem cell transplants (SCTs) are a vital option for AML but are a very harsh treatment and the current success rate is only around fifty per cent.

Continued research into finding kinder treatments and improving success rates for SCTs is crucial and gives hope to the 27 people in the UK who receive a leukaemia diagnosis every day.

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Emma has been chosen as the face of Leukaemia UK’s annual national Winter Appeal, which aims to raise vital funds for leukaemia research and stop the disease from devastating more lives.

She said: “Since diagnosis it has been a horrendous journey for my family, but although the treatment has been incredibly challenging, it has given me hope thatit will cure me of the disease and allow me to live a normal life, cancer free.“Looking back, I don’t know how I got through those days.

Leukaemia UK infographicLeukaemia UK infographic
Leukaemia UK infographic

“I remember one doctor saying to me, ‘I hope at one point soon we won’t have to do what we’re doing to you, because with the radiotherapy and chemotherapy, what we’re really doing is pumping you full of poison. We have to find better ways to destroy cancer cells’.

“And if I had one wish this Christmas, it would be for less gruelling, less painful leukaemia treatments to be discovered.

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“I’m so happy to be able to tell you that my cancer is in remission. The transplant worked as well as anyone could have expected. But we have to keep funding research to find better, kinder ways to treat leukaemia.”

The charity said more than 3,000 people are given the devastating news they have leukaemia every year in the UK, including 100 children.

Leukaemias such as Emma’s are difficult to treat and, despite progress, five-year survival for AML across all age-groups stands at just 15.3 per cent.

Fiona Hazell, chief executive of Leukaemia UK, said: “Important discoveries are happening all the time within blood cancer research.

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"Yet despite progress, leukaemia remains a difficult disease to treat and just over half of leukaemia patients currently live longer than five years after their diagnosis.

"Further research is therefore vital. Leukaemia UK’s winter appeal will help to continue funding research that has the potential to both save and improve lives.

“We are asking for your help this Christmas, so that we can continue to accelerate progress for people like Emma and give the next person diagnosed with leukaemia the best possible experience of diagnosis, treatment and care.”

A stem cell transplant like the one Emma received is a life-saving treatment which is often the only effective treatment for acute myeloid leukaemia (AML).

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But relapse rates following stem cell transplants are high and AML is still one of the most deadly forms of blood cancer.

Dr Pramila Krishnamurthy, a Leukaemia UK John Goldman Fellow co-funded by Rosetrees Trust, is researching how relapse can be prevented after stem cell transplantation.

She said: “When patients relapse or fail to respond to treatment it’s heart-breaking – especially when we only have limited treatment options in this scenario.

“During my John Goldman Fellowship I am exploring the use of donor lymphocyte infusion to help correct defects in patients’ immune responses, so that they are better able to fight their underlying cancer.”

To learn more or to donate visit leukaemiauk.org.uk.

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