BRAVE youngster Kyle Holmes, who has an incurable muscle-wasting disease, is going for the trip-of-a-lifetime to Disney World in Florida, thanks to wish-granting charity.
The 11-year-old from Ferrybridge – who was diagnosed with Duchenne muscular dystrophy five years ago – received the tickets from the Wish Upon a Star Foundation on Monday.
Kyle’s family appealed to the charity in January after his condition – which slowly turns muscle into fat – started to deteriorate, and he needed to use his wheelchair more frequently.
The Purston E-act Academy pupil said: “It’s awesome we managed to get the tickets, I didn’t think we would get them and I am really excited about going.
“I’m already packed and really looking forward to seeing the new Harry Potter ride.”
Parents Katrina and Don Holmes said they were “over the moon” the charity offered them tickets for the whole family to visit the theme park.
Katrina, 43, of Arncliffe Drive, said: “It is absolutely wonderful, we thought the trip might just be for Kyle and a carer to go, but for us to go away all together is so special.
“Kyle has really started to deteriorate over the last year, one day you will see him coping and the next minute he can’t do the little things, like moving himself around as easily. The only treatment is to manage it.
“We had to delay the trip because he fell over and broke his arm a few months ago. Because of his condition, the doctors couldn’t operate on the break because his body may never have recovered from having the anaesthetic, so he had to just have it in a cast and hope it would mend itself.
“His cast is off now and that is why we knew we had to take him as soon as we could, while he could still enjoy it at his own pace.
“He is so excited about going to see the Harry Potter World, he’s a huge fan.
“We visited Florida about six years ago when Kyle was first diagnosed but we never thought that we would ever go again as a family.”
The Express reported in 2007 that the couple – who have three other children, Katy, 20, Sarah, 16, and 13-year-old Liam – had to remortgage their home to raise £20,000 for major adaptations so they could care for Kyle at home and paid for holidays on credit cards.
Katrina said: “We are still paying off the debts from the first holiday but anytime that we get to do something special with Kyle is worth it.
“When we found out about his condition, there was also a boy in hospital, who was Kyle’s age, who had been in a car accident but he didn’t survive.
“On that day it brought it home, yes, he’s got a life limiting condition but at least we are taking him home.
“We realised then we were just so lucky to have this amount of time with Kyle so we always make the best of what we’ve got.
“He does get down about it some days, but you can only give up or carry on.
“He is such an amazing little boy and deserves to have this special trip.”