Help give hope to Kippax youngster Josh

Josh Glossop at Kippax Ash Tree Primary School, with his dad James and fundraiser Carol Smith. (p610d506)
Josh Glossop at Kippax Ash Tree Primary School, with his dad James and fundraiser Carol Smith. (p610d506)

The family of a four-year-old boy with a rare condition that means he is unable to walk or speak is raising money for research into possible treatments.

Josh Glossop, of Kippax, has MecP2 Duplication Syndrome, which means he has too much of a certain gene in his body.

Despite being four, he is still unable to crawl, walk or even speak.

His dad James Glossop, 31, and mum Samantha Jones, 31, have launched a campaign to raise money to help with research being carried out in the US in the hope of finding treatment for the condition.

Mr Glossop, of Sandgate Terrace, said: “Josh is four now but his mental age is just one.

“He is still not able to have a conversation. He can’t say any words.”

Josh was diagnosed with the condition when he was just a year old after a health visitor noticed he wasn’t meeting the development levels for a child of that age.

The Kippax Ash Tree pupil was transferred to St James’ Hospital in Leeds for treatment and is still undergoing physiotherapy.

Mr Glossop said: “It was certainly a big blow when Josh was diagnosed but we had to come to terms with it and do what we could to help him.

“We started looking at treatment and cures and we got in touch with another parent who knew about the research being done in the US.”

Doctors researching the condition have already been able to reverse its effects in mice and hope to be able to produce a drug to reduce the effects of the syndrome in humans within three years.

Mr Glossop added: “The current treatment costs around $230,000 and the 401 Project, which is the name of the fund, is about a third of the way towards that at the minute.

“That’s why we are doing the fundraising - to raise money so doctors can carry on their research because it’s so expensive.”

Mr Glossop has already done a number of charity runs to raise cash and fellow runner Carol Smith, who he met at last year’s York Marathon, has pledged to tackle six more runs for the fund this year.

He added: “I only started running because of Josh and I think I just caught the bug - I ended up running a marathon by the end of year.

“Having only met Carol last year it’s amazing how much support she has given us and I can’t thank her enough.”

For more information or to sponsor Carol visit and search for ‘Carol Smith’ - the page is called ‘A Year for Joshua’.